The involvement of independent academic researchers in examining data and conducting analyses is central to producing trustworthy research. Because of this, many journals require authors to sign a statement acknowledging they “had full access to all the data in the study,” and take “responsibility for the integrity of the data and the accuracy of the data analysis.” Indeed, the International Committee of Medical Journal Editors (ICMJE) recommendations for authorship note that authors should be “accountable for all aspects of the work.”
A rapidly increasing number of published articles rely on analyses produced via the TriNetX platform. However, TriNetX users don’t get full access to the information in the platform, muddying the truthfulness of any analyses of the data and compromising the integrity statements offered by authors and accepted by journals.
Instead, users see aggregate counts, descriptive statistics and estimated quantities, such as hazard ratios, without ever interacting with line-level data. And because the underlying data are constantly changing as new records are added, analyses run on the platform are often irreproducible, even by the researchers who originally conducted them.
Continue reading Guest post: The uncomfortable truth an explosion of papers reveals about authors’ access to data